Viewing entries tagged
Patient

Carolyn's Story

Bullous Pemphigoid Patient

“It's been about 2.5 years and I've learned how to manage my condition, advocate for my care and yes, have a life - and I am doing well.”

Brady's Story

Caregiver - Epidermolysis Bullosa

“With increased awareness and understanding, we believe that Brady will see treatment and hopefully a cure within his lifetime.”

Cara's Story

Caregiver - Eczema

“When I think of our family's struggle with eczema, one phrase comes to mind: 'it shouldn't have to be this way'.”